April/May 2025

[Nevergiveup]

Hi NHawth7

I definitely think no news is good news because I got a phone call 1-2 days later when we had the high risk result. They do say if there’s a problem they call you so I think you will be fine.

How many weeks are you now? I keep loosing track. It’s a shame you haven’t started to feel better yet.
I’m feeling rough most of the day. It’s not nice early afternoon and lasts until I go to sleep. It’s not nice in the morning either but easier to put up with. It’s definitely a different sensation than my other pregnancies though x

[MSS]

Hi nevergiveip how you feeling? Did u paying extra for zymot? I can speak to our consultant about it? Which brand of coq10 did you ladies take?

[Nevergiveup]

I’m feeling rough, like not sicky just yucky. I slept this morning and felt ok after that. Having a strawberry can sometimes help. I’ve also had very intermittent sensations in my boobs today.

Nutravita from Amazon is what we used because most tablets have 100mg so you have to take 2 whereas they come in 200mg so 1 tablet at a time.

The zymot I think was about £200 so in the grand scheme of things not too bad.

It’s definitely worth a conversation with your consultant about it all. Especially if it gives you an extra boost x

[NHawth7]

I think my main thing is tiredness, I think it’s the mix of pregnancy and work together. I work as an IT consultant and often have to visit clients and have evening events to attend. It’s wiped me out the last two weeks but should start to calm down I think for a bit at least. I’m 16 weeks this weekend. Definitely less nauseous, that’s really settled down and I’m eating much less beige!! Thanks, I think it should be okay too with the NIPT results since they’ve not rung. I don’t feel like we get post delivered much around here so perhaps just stuck!

MSS I used to get all my supplements at H&B, mainly for the points. I think they do 200mg capsules too. I was on 600 a day and then 2000IU for vitamin d.

Nevergiveup, your symptoms sound good, sounds like your hormones are rising nicely! Do you have a date for your next scan? I might have missed you mentioning that. I have a date for my 32 week scan but not the 20 week one yet xx

[Nevergiveup]

Hi ladies how are you both?

NHawth7 glad you are feeling less sicky. It makes eating more enjoyable.
My scan with care is Wednesday, it can’t come quickly enough because yesterday afternoon and all today I’ve been bleeding again, it’s been brown so not as concerning but it just started to be red and I’ve got a bit of tummy ache with it too so I’m really concerned that things are going badly.

I’ve also got our recurrent miscarriage appointment the week after too x

[MSS]

Hi ladies how you both doing?

How you feeling nevergiveup? Has the bleeding stopped?

[NHawth7]

Hi Nevergiveup, how are you getting on? Really hope your scan tomorrow is more good news and that the bleeding is just what it was before. Is it a morning scan?

MSS, how are you getting on lovely?

All fine here xx

[MSS]

Hi nevergiveup good luck with your scan tomorrow.

Hi Nhawth7 glad you’re doing well. Filled with lot of anger at the moment just want to cry and scream crazy as it sounds. But not done that thou LOL. Just sick of being stuck in the same place. Sorry for being negative.

[NHawth7]

MSS, it’s completely understandable. I always wondered if taking up boxing would have helped me during rough times, just getting all the anger out, never ended up trying it because we just roll from treatment to treatment don’t we!! If you don’t feel like being positive for a bit then don’t, there’s zero point trying to force it. You’ll find a better place when you’re ready. Just big big hugs.

Still no results and it’s been almost 4 weeks, have left a message for the midwife, she’s back in work tomorrow xx

[Nevergiveup]

Hi ladies

MSS sorry you are not really feeling it atm, it’s totally understandable and something that you need to go through, don’t rush it. It’s probably partly due to coming off all the meds too so take it easy.

NHawth7 that’s a long time to not have the results back so good call for chasing it. Have you heard anything today?

I did stop bleeding, well the red blood. They think the brown clumpy stuff is probably due to the crinone gel.
My scan went well, saw heartbeat, measures 11.7mm dating 7 weeks 3 days so 1 day behind but they said that’s perfectly normal. We saw legs and it moved a complete 180 so active little one.
I’m feeling terrible though, really yucky like all day but by 1:30pm it gets worse until I’m asleep and it’s bad, uncomfortable and I’m really not sure what to do to make it better. They said it’s probably the meds because I’m on a lot, like 5 lots a day so they said when I stop that I should feel better.
I’ve been discharged from care now with a viable pregnancy which I’m so happy about but I’m still really anxious and worried that something will go wrong like the other times.
Baby is in the right place at the top of my uterus and the area of blood is at the bottom so she said that is a good position because it can come away without interfering with the pregnancy. So overall a good day. I’ve been asleep this afternoon because I feel so rough, it’s not helped

[NHawth7]

Nevergiveup, that’s such good news! Although I know you’ll still be nervous, I don’t think it ever fully goes away. Do you stop all the meds at 12 weeks or keep some going longer? Sorry you’re not feeling great, it really is a bit miserable when it’s so constant. I did notice if I could get out for a short walk that it temporarily helped.

It’s a bit strange being discharged from Care isn’t it. You sort of feel like it’s a mistake don’t you and far too soon. It’s not really celebratory give what you’ve done to get there.

Midwife rang first thing. She could see my results on the system and everything is fine, low risk. She’s no idea why they’ve missed sending a letter out but I presume I’ll get one now in the next week.

[Nevergiveup]

NHawth7 that’s fantastic news that everything’s ok. I’m sure sometimes our post goes next door and they pop it through our door, maybe it got lost somewhere. The main thing is everything is ok.

I stop all meds at 12 weeks but because I’m taking steroids I have to wean off those so I have to take 4 atm a day so I think it drops to 2 for a few days then 1 and then every other day etc, think it’s like a 2 week gradual decrease. I’ve booked my flu jab for next week, have you had yours? They reckon with the steroids lowering my immune system it’ll just hit me harder with side effects… the joys. I have asthma so I get it every year anyway but had to check with having the steroids.

I usually park a few streets away for the school run and then walk a bit with the kids. Walking doesn’t help, moving seems to make it worse. I try and stretch my tummy and sit up straight or iron so I’m stood but still, I still feel rank. The nurse said today to speak with my midwife in 2 weeks or if it’s unbearable then my gp. With my eldest I was so bad, couldn’t keep a sip of water down and I was on less meds and I just had to come off them a week or so early.

It does seem strange being discharged. The nurse said they are a fertility unit not pregnancy unit so they can only support until 8 weeks unless it’s about meds and then it’s 12 weeks. I saw my consultant today, she wanted to come and see us to say congratulations so I told her she’d done a good job and she wants to see baby all being well. She hoped I would feel better when I’m off the meds.

It seems like there should be another scan in a week because of the problems I’ve had with miscarriages, it just seems a long time to wait from 7.5 weeks to 12-13 weeks. A lot can happen in that time.

Have you told your little boy he’s having a sibling yet?

MSS how are you? Have you started your withdrawal bleed yet? Have you got anything planned to take your mind off things? I’m so sorry you are having to go through all this time after time. Sending big hugs x

[MSS]

Hi ladies hope you’re well.
I had my bleed last Saturday. I just don't feel i am in a good place at all. Im trying to bounce back but i just cannot seem to get out of this hole. I just cant see any light anymore. I may try counselling as i hate feeling like this, but not decided. I am gone have a break from here as I feel it is unfair for me to be so negative on here. I will check in time to time.

Good luck ladies hope all goes well for you. I know its scary at the same time but do try to enjoy the time. Sending you both lots of luv xx. Speak soon

[Nevergiveup]

Oh MSS I really feel for you! Really don’t feel like you need to leave though if there’s something we can do to help, even if it’s just to talk about things. I really don’t mind listening and trying to support you in any way I can but totally get if you need a break from here. Just please please take care and be kind to yourself. It really is a long hard journey going through ivf with an emotional rollercoaster of really low lows. Counselling sounds like it might be worth a try, even if you decide it’s not for you it still might be worth just giving it a go. Sometimes it’s good to talk to someone new with a different perspective and approach.
I always got offered counselling after a failed transfer and my reaction was always ‘well it’s not going to give me a baby so what’s the point’ but I’d always tend to get back doing another transfer although after my 16 week miscarriage it took a long time for me to try again and then during the transfer I felt guilty for wanting to try again so maybe it might have helped me deal with the loss
Sending lots of hug and love x

[Nevergiveup]

So yesterday and this morning I felt so bad I decided to try and book a drs appointment. I filled in how I felt (thought the yucky feeling might be down to heartburn). Anyway it came back with I needed to go to A&E, bit drastic for feeling yucky and I couldn’t actually get a drs appointment so I went to speak to the pharmacist.

He agreed and told me to try gaviscon. I had some this morning, gagged but kept it down and then fell asleep for an hour or so. It actually made me feel better. The problem is I can’t take it within 2 hours of taking my oral ivf meds so I’m still suffering for some of the day but I’ve actually managed to eat chocolate this evening and I’ve not done that for 2 weeks.

I’ve had general tummy ache today but that could be because of the scan yesterday x

[NHawth7]

MSS, just sending you the biggest hug and lots of love. Look after yourself and do what you need to. Personally I think therapy really helped me after my ectopic so I would recommend it, and I’m glad I looked after myself by doing it. Hope to hear from you when you’re ready.

Nevergiveup, sorry you feel so crap. It will ease but it just feels endless when you’re in it. You’ll feel like a walking pharmacy at this rate! I’ve got the start of heartburn on an evening so I think this could be my next symptom to kick in.

We told my little boy about the baby and he was thrilled, still on my toes to make sure he doesn’t knock me but when you explain about being careful he’s really listening well. I’ve got the midwife on Monday, feels like the weeks are flying past a bit xx

[Spring22]

Hi all,

Its been a while but so many things has happened. Nevergiveup congratulations and wishing you all the best.

So after lots of consults with different doctors they decided I need a hysteroscopy before I proceed to not have any surprises. I took a pregnancy test out of the blue the next day because I was feeling weird and got the faintest line and did a clear blue digital which showed pregnant. Never in a million years did I think I would conceive naturally after 7 years Multiple IVFs and a recent failed transfer. I decided to take HCG blood tests and today on the 3rd one the levels have dropped so its looking as if its an early miscarriage or an ectopic. Feels like a cruel joke to conceive naturally after all this time to lose it all.

Sorry for the long rant but needed to say this since we havent told anyone yet and to make matters worse I started a new job last week. I found out im pregnant the day after i started work. Feel so lost at the moment. Not sure what to expect, i have to go back to EPU in 48 hours for confirmation

[Nevergiveup]

Hi Spring22

That’s a lot to take in! We had a similar experience 18 months ago where we conceived our ‘miracle’ naturally, scans at 8 and 12 weeks were perfect and then the bloods indicated high risk for Edwards so did the nipt and again high risk and went for an amneo at 15 weeks to find no heartbeat in the scan they do prior to the procedure. So I totally get your excitement with having your miracle for it to potentially be ripped away.

In May-July this year I also got pregnant via ivf on a fresh cycle (when I started this chat line) and ended up with pain so went to the EPU and they did blood hcg and after the second one found a ‘suboptimal’ increase it went from 612 to 633 in 48 hours and then to 834 after another 48 hours. They thought that was eptopic as I was diagnosed with PUL but a few days later they found the pregnancy in my uterus but it just didn’t grow and equally didn’t naturally pass either. It’s tough isn’t it to have to keep being in limbo, I totally get what you are thinking and feeling because I’ve been there, you aren’t alone. I felt like it was only me that was in that situation and although it doesn’t 100% help to know you aren’t alone it does help to know that someone actually understands how you feel or it did for me anyway.

Keep us updated and if you want/need to chat then I’ll be checking on here. Really take care of yourself.

Have your hcg bloods been all from the same place? I remember my first bloods they put through a rapid test which takes 30 minutes and it was one result and they also sent them to the hospital lab and it was a different level so they only took the lab results from then on x

[Nevergiveup]

Hi ladies

A little update from me, I have my recurrent miscarriage appointment tomorrow afternoon, but nervous about that.

I have also booked for my nipt test. They need to scan me first because I need a dating scan so they know I’m over 10 weeks, which is on 27th October. Then if they date over 10 weeks, which I should be 10 weeks 2 days then they will take me to fetal medicine to do the bloods. Now the last time I was there was when I found out that my baby had died at 15 weeks. The midwife on the phone told me she remembered me from that day and even just talking about the appointment etc I found myself welling up. It’s going to be so triggering. I’m dreading going for the scan and finding no heartbeat, I even dreamt about it last night.

I’ve also been suffering so bad with heartburn to the point it’s affecting my life so much. I mentioned this to the midwife booking the nipt stuff and she told me to talk to the recurrent miscarriage dr tomorrow because he should be able to prescribe something but I don’t know. I’ll mention because I just constantly feel yucky and if I even have a sip of water after gaviscon I am so uncomfortable do I don’t drink and then that’s not going to end well. I have no other symptoms which is a bit concerning but to be fair I don’t think I could handle anything else, I’m on the edge now. I’ve gone through a bottle of gaviscon in less than a week and I can’t even take the max dose because of my ivf meds roll on when it’s time to come of my ivf meds!
I’m so so so nervous about the progression of this pregnancy. It would be so nice just to have a camera stuck up there watching what is happening, I’d watch it all day every day x

[Spring22]

Hi nevergiveup,

How did your appointment go? It is very difficult to relax during pregnancy especially after what you ve been through cos that is exactly how i feel. I remember the heartburn being quite horrible but they could possibly prescribe something else if it that bad. Hopefully you can go off the IvF meds as well l maybe that helps a bit.

Im at the EPU this morning waiting but it doesn't look good, they did a urine test and it was quite faint. Im still waiting to be seen by the Dr hopefully I ll know the way forward. My HCGs are from the same lab so i dont have high hopes. Everyone keeps telling me but its good you conceived on your own but it doesnt really matter as it still didnt work and this was after 7 years. Not sure how i will get through this.

[Nevergiveup]

Hi Spring22

Aww sorry to hear it’s looking faint I know how hard it is. It’s really not ideal at all but the living in limbo makes it worse.

Getting pregnant by yourself naturally shows that your body is able to get pregnant and an embryo can implant. I had the same thing. My body seemed to be able to do that bit and would hold onto a baby even though it wasn’t viable. So therefore with knowing that the issue was with the embryo being viable which is potentially the same as you so yes it gives absolutely no consultation because it’s possibly not a viable pregnancy but you do know your body knows that it can do what it’s supposed to so it is helpful knowing that.

My appointment yesterday was a waste of time, once he knew I was pregnant he wasn’t interested in the appointment really. He said there’s no point in doing other tests to make sure things are ok. He wouldn’t entertain looking into other meds for the heartburn even though I said it’s affecting my daily life and explained things I’m unable to do and just said I need to stick to gaviscon but maybe have it more often so explained I can’t have more because of timings of ivf meds and he just said oh well you’ll have to stick with it. He did say my results were back from my miscarriage in July and it’s a chromosome issue, an extra copy of chromosome 22. We didn’t think they would find out what it was because the fetal pole had started to disappear but they managed to so in the end after wanting to miscarry at home this time it was actually beneficial to do it in hospital and send it off for testing so we actually got results.
He did say he was hopeful and odds are good for us and went on to say it’s 50/50 but to me those odds are not good 80-90% are good 50% is questionable.

Good luck today and keep me updated x

[Spring22]

Hi nevergiveup,

So sorry they dismissed you cos you still would want some answers I guess. Even with the heartburn issue, maybe you could call the GP or the EPU and see if they can prescribe something if you tell them how bad it is. I remember mentioning it to my midwife and she told me if it does not resolve with gaviscon I should do a request with GP.

My bloodwork came back and the hcg is the same so they are thinking its a miscarriage since the hcg is still very low less than 100. They did a scan but obviously they saw nothing. I haven’t started bleeding yet so still waiting it feels like it will never end. Im back to work on Monday so not sure if I will go in or call in.

[Nevergiveup]

Hi Spring22

I asked about the heartburn stuff in EPU a few weeks ago but they said they aren’t a prescriber so can’t do anything. They suggested contacting GP so I filled the online appointment thing out and it told me I needed to go to A&E because of my symptoms so unable to book an appointment I have the booking in appointment with the midwife tomorrow so will talk to her about it and see what she says.

Sorry to hear about the hcg. What are they going to do next? When they didn’t find anything with me last time they scanned me a few days later and found a pregnancy sac and fetal pole so was able to confirm it wasn’t eptopic but still ended in miscarriage but my body didn’t reject it, I had to have medication. Are they planning on scanning you again or doing more bloods? They usually suggest contacting them after a week if no bleeding etc.

For the last 3 evenings Ive bled before going to bed, each night getting worse. Yesterday I had a bit of a gush of red/brown. And I’ve got tummy ache on and off again. I don’t know if it’s just things growing/stretching or if it’s a bad sign etc. I’m just so worried but not sure what to do really other than talk to the midwife about it tomorrow.

Did you end up going to work yesterday? x

[Spring22]

Hi nevergiveup,

I ended up going to work as I feel ok. Since I had 3 results with lowering hcg they told me to wait for bleeding and repeat hcg in a week which is tomorrow. But I havent had any bleeding and they didnt see anything on the scan last week so not sure if its an ectopic. I would be 6 weeks today, dont have any hope to be honest as it has to be a miracle at this point but hoping I ll pass on my own and not need to do anything.

I hope your midwife appointment went well. I had bleeding in my 1st pregnancy and it was fresh blood, they admitted me in hospital and kept me for two nights for monitoring and they had done a swab for me but I was around 19 weeks at the time. I hope it resolved itself

[Nevergiveup]

Sorry to hear that Spring22. How did you get on today?

My appointment was ok, should have been an hour but was there 2.5 hours went in slightly late as she was running late and then with all my history it took a bit longer and then she couldn’t get my blood so ended up at the blood clinic and even they struggled and had 3 more attempts and on the 3rd the lid came off the vacuum top and my blood was pouring out the wire all over the bloke and me and he had to shout for assistance. They had to stop all people coming into the blood clinic because blood was everywhere and I’m bruised so much which is going to make getting blood for my NIPT test on Monday interesting.
I was surprised because maternity notes on now on an app, you don’t get that big maternity book now.

NHawth7 how are you getting on?